Mama's social worker

Hi again, all.

A social worker named Lee Ann came to visit with mama to evaluate her level of benefits at this point and see if anything more can be done for her. These are the salient things we learned.

  • Mama has more than sufficient Medicare coverage; this explains why I have not been getting any bills from the home care service, New Hope.
  • She has too much monthly income to qualify to get Medicaid to pay for her pads. She says she is glad to continue paying for them herself, which gives me some relief.
  • Medicare will not pay for an affordable lifting chair. I learned from a friend with much experience in this realm that I can find a much more affordable one at Nebraska Furniture Mart. The ones that Medicare are willing to approve are far more expensive, and the portion I would have to pay exceeds those that are carried at Nebraska FM. I will explore that later this month.
  • Nathan has full power of attorney, both legal and medical, to speak for mama and to ensure that her wishes are followed at all times.
  • New Hope will not increase the frequency of their visits and the comprehensiveness of the care they provide until such an increase is warranted by mama's continued decline.



Mama's new window blinds

Hi again, all. Here's another update on what I'm doing to provide for mama.

Mama wanted me to take down her curtains and blinds and clean them. First, she had to remove her glass collection from a table that sits in front of the window and set them all on the bed.

After washing the window treatments and putting them back up, I asked mama if she wanted me to replace the old, worn-out, damaged blinds (black for maximum light blocking) with new cordless blinds (white). She said she would like that.

That was Memorial Day. The room looks very different. I'll post a few pictures.

Working from home??

It’s really come to my attention that companies seem to think that they can demand that we the workers MUST use our own resources to support THEIR business… all this “work from home” bull shit. Case in point… the company my wife works for. They really did NOT think any of this through at all. They provided a tiny little laptop and expected her to not only use OUR home network, but to actually produce just as much work as she had been at the office with two big monitors. They also have NOT provided a real phone solution so she’s had to use her personal cell phone… again… to support THEIR business, and they don’t even offer some sort of compensation for doing so. Now they’ve had her install a “softphone” application on her cellphone that is supposed to connect into their phone system so the number presented appears to be coming from the company and not her cell phone. However, their IT department is complaining that the wireless signal inside our house (which again, is MY network) isn’t suitable to allow this application to work which would seem to imply that they expect ME to modify MY network to accommodate THEIR business. I do not allow other people’s computers to touch my internal network but do provide a DMZ network for guests. But if that isn’t good enough for THEIR business… tough shit.

THIS sort of thing… really bugs me… In my case, the company has been doing everything they can support me in this. Although I never asked for it, they pay me a monthly stipend just for using my cellphone for email and the Two-Factor Authentication application needed to log into services inside the network. They also do not complain at all if I have any sort of connectivity issue and will quickly jump in to assist if I do. They would even go so far as to provide me with a mobile hot-spot if need be.

But what the hell is with these companies that seem to think they have some right to demand this of employees?? Think it through people.


Update on mam

Hi all. I have decided to begin giving you all occasional updates on how mama is doing and what I/we are doing to take care of her.

We did nothing special for her on Mothers' Day. In past years, we have always preferred to wait until the next Sunday in order to avoid huge crowds in the restaurants. Obviously, the current

"dress rehearsal for a police state" has obviated that concern; nevertheless, the force of habit prevailed this year, and Mothers' Day came and went with no observation on our part.

The following Sunday, I took her to an area of East Dallas we call the Swiss Avenue District where some of the older money and older mansions can be seen. I have no pictures of our outing--darn! Just forgot to pick up the phone until it was too late.

I bought her two bunches of small, multi-colored dianthus and left them in a lavendar-colored (one of her favorite colors) vase in the kitchen where everyone can enjoy them.

We have engaged a hospice service called New Hope that is paid for by her Medicare. They send a nurse to the house once per week to monitor her condition and report to the medical people who will use that constantly-updated information to ramp up her care, as needed, right up to the time of her death.

While driving around in Swiss Avenue District, she told me, 'I don't like that nurse.' 'What's wrong?' I asked. 'I don't know. I just don't like her.' So I got New Hope to send her a new nurse who showed up for the first time today. She likes him very much.

New Hope was sending a physical therapist whom she loved. He stopped coming for a while due to fear of COVID19--silly boy! I am trying to get them to restart his twice-weekly visits.

New Hope will soon send a social worker to talk to mama and find a way to get her pads paid for by Medicaid. They are quite expensive.

Future updates porbably won't be this long, and some will include pictures.